Monday, September 15, 2014

It's Official- Kids' Life-saving Meds No Longer Covered

Today's the day! Our boys' life-saving medications are officially no longer covered. 

Luckily, I got refills a week before coverage ended. Last week. I received the physical copy of the letter their doctor had previously emailed to me. The second letter. The first letter never reached the intended folks at the insurance company. Their physician faxed a letter again on September 4th. Pictures of the doctor's second letter, the letter stating we can't appeal until our plan changes (back), and pictures of what we will now have to pay instead of a $150 co-pay.

I've really enjoyed reading the comments on Twitchy and the Daily Caller. Some people are worried about the left attacking me or the IRS auditing us. The left thinks I'm lying, as usual. What can I say!? I post receipts/invoices, the letters, doctor's letter and still they think I'm lying. If what they see here doesn't convince them that I am telling the truth, I don't know what will.

I thought if I put everything here, with the exception of the 11 letters stating which meds were being dropped from coverage, folks might actually believe it. Well, rational beings. The 11 letters from insurance stating which meds are no longer covered can be found here. Sorry for links just being cut and pasted. Writing this as we head to second doctor appointment of the day!

And here:

Doctor's letter trying to appeal the meds no longer being covered:

Below is the letter stating we can't appeal until our plan changes ( again? Changes back? Because these meds have been covered for years):

We used to pay a total of $150 in prescription copays fir the compounded meds that are no longer covered. Now we will pay $653.58. One med is available from a pharmaceutical company which will cost us $33.33 each month ( total for both boys) plus the $513.50 and $106.75 monthly - I did mock orders to see how it would change costs for us. Keep in mind that we already pay $150-$200 each month for the other OTC portions of the mito cocktail already. This on top of all the other prescription copays that Obamacare has increased. 

Friday, September 12, 2014

Gianna's Cookbook!

A good friend's daughter has Spina Bifida and she just published her first cookbook! Please check it out here.

I think you'll like it!

End the Export-Import Bank Rally

This past Tuesday, we met with Representative Virginia Foxx's staff and asked them to tell her that we want Congress to let the Ex-Im Bank expire. 

We wrote letters to Rep. Foxx and then headed outside for a sign wave rally. 

Here are a few pictures from Tuesday:

Key Vote- VOTE NO on Amending the First Amendment

I never imagined a day where 49 senators would sponsor a bill to amend something in the Bill of Rights. If this doesn't wake people up to exactly how rabid the left is in this nation, I don't know what will. Urge your senator to vote NO. If your senator is a sponsor, also urge them to stop smoking crack.

From Freedomworks:

As one of our over 6.6 million FreedomWorks activists nationwide, I urge you to contact your senators and ask them to vote NO on S.J. Res. 19, a proposed Constitutional amendment that would enshrine into law the government’s ability to restrict political free speech. Sponsored by Senator Tom Udall (D-NM) and co-sponsored by 48 of his colleagues, this amendment would take the unprecedented step of amending Americans’ First Amendment rights.

Free and open political discourse is the lifeblood of a democratic form of government – so essential to freedom that the framers of our Constitution placed its protection as the very first limitation on government power enshrined in the Bill of Rights. This amendment, in the name of limiting corporations’ influence over politics, would in fact allow the government to regulate any expenditure that they deem to be intended to “influence an election”.

The only limitation placed on this sweeping power is that the amendment should not “be construed to grant Congress or the States the power to abridge the freedom of the press.” The very fact that this qualifier exists shows that the government would be allowed to restrict any other expression of a political opinion that costs money. This could include books, movies, and radio programs – not to mention the expressions of any tax-exempt organization (churches, think-tanks, even unions) that touch upon political issues.
Simply put, the federal government should never be allowed to restrict any non-violent expression of political opinion by any group or individual – and that includes when private funds are being used to disseminate that expression.

Therefore, we hope that you will call your senators and ask them to vote NO on the Udall Constitutional amendment to limit free speech. FreedomWorks will count this vote as a Key Vote when calculating its Economic Freedom Scorecard for 2014. This scorecard is used to determine eligibility for the FreedomFighter Award, which recognizes Members of Congress who consistently vote to support economic freedom.

Matt Kibbe President and CEO, FreedomWorks

#Obamacare Has Destroyed My Family | Pundit House

 Christian Hine from Pundit House did a nice write up on what's going on with my family. I'm blessed with so many excellent writers who want to share what's going on with our family. Pay attention, because this could happen to your family, too. Obamacare is an equal Opportunity destroyer. One illness and your family could be in the same boat as mine!

Obamacare Has Destroyed My Family | Pundit House